Virsaviya ‘Bathsheba’ Borun-Goncharova has been beating the odds since before she was born.
When she was pregnant, her mother Dari was told her child would never survive, however six-years later her bright and beautiful daughter is still fighting on.
In fact, it’s fair to say that the she’s quite the little warrior.
Virsaviya suffers from a condition called Pentalogy of Cantrell, a rare congenital disorder which effects less than one in a million births.
Symptoms and severity of the disorder vary greatly, but in Virsaviya’s case it means that both her heart and intestines are outside of her chest and abdomen.